Since 2021, Cause UK has had the privilege of providing media support on behalf of the Leeds Hospitals Charity, to Ian Flatt and his wife Rachel. Ian has terminal Motor Neurone Disease (MND). We achieved regional and national media coverage to help tell Ian’s story including Steph’s Packed Lunch on Channel 4, Sky News, BBC and ITV news, as well as extensive newspaper coverage.
Despite needing a ventilator for 16 hours a day, Ian has raised over £10,000 for the Leeds Hospitals Charity’s appeal to build a new Rob Burrow Centre for Motor Neurone Disease for the Leeds Teaching Hospitals NHS Trust, as well as the MBD Association. He has completed two 100-mile treks and on May 4th reached the summit of Snowdon in his “tangerine dream machine.” The equivalent of climbing 4,610 steps.
Ian said: “The Rob Burrow Centre for Motor Neurone Disease is very important to us as a family. We’re passionate about supporting other families going through this difficult disease. The support of the team at Leeds and their specialist help is so crucial for us to live as well as we can as a family. Whilst my mobility, dexterity and respiratory functions are failing, my sense of adventure remains intact.”
The new Rob Burrow Centre for Motor Neurone Disease will have access to a range of holistic support tailored to their needs in a non-clinical setting, from tech support, speech and language therapy, to diet and nutrition advice, and physiotherapy.
Photographs of Ian and his wife Rachel, courtesy of Guzelian Media.